Introduction
Hidradenitis Suppurativa (HS) is a chronic skin condition that is often misunderstood by the general public and even mischaracterized within healthcare conversations. Painful nodules, abscesses, and scarring are some of the most visible aspects, but the misinformation surrounding HS can be equally damaging. Misconceptions not only create stigma but also delay accurate diagnosis and treatment for those who need it. Addressing myths and replacing them with facts is a crucial step toward enhancing awareness, reducing social stigma, and empowering individuals to manage the condition effectively. By separating truth from misconception, it becomes possible to foster a more informed and compassionate understanding of HS.
Myth: HS is Just a Severe Form of Acne
“One of the most common myths about HS is that it is simply a more aggressive version of acne. This misunderstanding often leads to improper self-treatment with over-the-counter acne products that do not address the underlying causes of HS. While both conditions involve the skin and hair follicles, HS is a chronic inflammatory disease that behaves very differently from acne. The nodules and tunnels that develop in HS are distinct from acne lesions and require different forms of medical management. Dismissing HS as acne oversimplifies the condition and prevents people from seeking proper diagnosis and care”. Says Scott Hutton, CEO, Biodesix
Myth: HS is Caused by Poor Hygiene
“A damaging misconception is the belief that HS results from poor hygiene. This myth can create feelings of shame for individuals living with HS, as it suggests they are somehow responsible for their condition. In reality, HS is linked to inflammation and immune system activity, not personal cleanliness. People with HS can maintain excellent hygiene and still experience painful flare-ups. The persistence of this myth often leads to unfair judgment and stigma, which can discourage individuals from seeking medical help. Breaking this misconception is essential to reducing blame and focusing attention on the real factors that contribute to HS”. Says Joe Kiani, Founder, Masimo Corporation
Myth: HS is Contagious
“A widespread fear is that HS can be spread from one person to another, which is entirely false. HS is not an infectious disease and cannot be passed through contact, shared objects, or proximity. Unfortunately, this misconception often results in social isolation, with others avoiding close interactions out of unnecessary concern. The truth is that HS develops from internal processes related to inflammation, genetics, and other health factors. Dispelling the idea of contagion can help reduce stigma and encourage stronger social support for individuals who may already feel isolated due to their condition”. Says Shamsa Kanwal, M.D, Consultant Dermatologist, myhsteam
Myth: HS Only Affects Certain People
“There is a misconception that HS only affects specific demographics, such as young adults, people of certain body types, or specific genders. While research has shown that some groups may experience higher rates of HS, the condition does not discriminate. It can affect people of all backgrounds, ages, and lifestyles. The belief that HS is limited to certain populations can lead to missed diagnoses in others, delaying treatment and worsening outcomes. Recognizing that HS is a condition that can affect anyone helps foster inclusivity in both healthcare and community conversations”. Says Bernd Montag, CEO, Siemens Healthineers
Myth: HS is Always Caused by Lifestyle Choices
“A harmful myth is the idea that HS is entirely caused by lifestyle habits such as diet, smoking, or weight. While lifestyle factors can influence flare-ups and severity, they are not the root cause of HS. Genetics and immune system dysregulation play a significant role, and many individuals develop HS regardless of their lifestyle choices. This misconception unfairly blames people for their condition and undermines the complexity of HS. Understanding that lifestyle may influence symptoms but does not cause HS is critical to providing compassionate support and focusing on effective treatment approaches”. Says Brian S. Tyler, CEO, McKesson Corporation
Myth: Surgery is the Only Effective Treatment
“A common misconception is that surgery is the only option for individuals with HS. While surgical interventions can be helpful for severe cases, they are not the sole approach. HS treatment is multifaceted and may involve medications, topical therapies, biologics, and lifestyle modifications alongside surgery when necessary. Each patient’s treatment plan is unique and should be tailored to their symptoms and disease progression. By perpetuating the idea that surgery is the only solution, many people may feel discouraged or fearful about seeking care. The reality is that multiple effective treatment options exist, and ongoing research continues to expand possibilities”. Says Ranjan Singh, Co-founder & CEO, HealthHero
Myth: HS Will Always Lead to Disability or Social Isolation
“There is a belief that HS inevitably leads to severe disability or complete social withdrawal. While the condition can be challenging and painful, many individuals with HS can live full, meaningful lives with proper care and support. Advances in treatment, greater awareness, and access to mental health resources are helping to improve the quality of life for those with HS. Social isolation is not an unavoidable outcome, though stigma and misconceptions often contribute to it. Challenging this myth encourages people to seek connections, pursue treatment, and remain hopeful about their futures”. Says Rogelio La O, Co-founder & CEO, Soho Global Health
Moving Beyond Misconceptions
Dispelling myths about HS is not just about correcting misinformation; it is about reshaping the narrative around a condition that has long been misunderstood. Accurate information empowers individuals living with HS, helping them to advocate for their care and reduce feelings of shame or blame. It also helps communities and healthcare professionals approach HS with greater sensitivity, improving support and treatment outcomes. Moving beyond misconceptions requires education, awareness, and empathy. By breaking down these myths and replacing them with facts, society can create a more supportive environment for individuals living with HS.
Conclusion
Hidradenitis Suppurativa is more than a skin condition—it is a complex disease that deserves accurate understanding and compassionate attention. Myths about hygiene, contagion, or lifestyle oversimplify the reality and deepen stigma, while misconceptions about treatment and outcomes can create unnecessary fear. By debunking these myths and replacing them with truth, the path opens for better care, stronger support systems, and improved quality of life. Recognizing HS for what it truly is allows those living with it to be seen, understood, and respected beyond the misconceptions that too often define their experiences.